health issues for cross-cultural adoptive families with children from China

 

general health questions
International Pediatrics Health Services,   (212) 727-0627


Canadian Government Health Requirements for Entry Into Canada (Canadian visa site)

Note: There are few internation adoption clinics in Canada ( a pathetic statement about health care priorities here)
Canadian Doctors who specialize in International Adopted Children include:
Dr. Angelo Simone offers medical consultation services to individuals involved in domestic and international adoption, and provides pre- and post adoptive consultations at his clinic. Dr. Simone, board certified pediatrician and endocrinologist, is the Chief of Pediatrics for the Trillium Health Center in Mississauga. The Canadian Clinic for Adopted Children counsels prospective adoptive parents, reviews video and medical reports. Dr. Simone screens the adopted children after arrival and provides ongoing follow-up and referral. The Clinic also has an extensive health care network of specialists in many areas. 2338 Hurontario Street, Suite 200, Mississauga, Ontario. tel: 905-848-8303. fax: (905) 848-5727 email address: asimone@attcanada.net
Website URL: http://CdnClinicAdoptedChildren.homestead.com/CdnMedClinic.html

The following information is from Robin Hillborn of Adoption Helper

  • Cecilia Baxter, M.D., Edmonton, Alta., 780-477-4605, fax 477-4072. Consulted by many Alberta families.
  • Jean-Francois Chicoine, M.D. International Health Clinic, Ste. Justine Hospital, Montréal, Qué. Accepts children with adoption-, travel- and immigration-related sicknesses. Because of a change in hospital policy in September 1998, this clinic no longer takes walk-in cases, only referrals from pediatricians. Until the policy change, the clinic had been seeing directly about 700 of the 900 children adopted each year to Québec. You can still get an appointment with Dr. Chicoine at the Quebec Travel Medicine Centre (see next). [From Gilles Breton, webmestre@quebecadoption.net]
  • Jean-Francois Chicoine, M.D., Pre-adoption Clinic, Quebec Travel Medicine Centre, St. Luc Hospital, 1001 St. Denis St., Montréal, Qué. H3T 1K2, 514-281-3295. Pre-adoption consultation before accepting a child proposal. Not covered by health insurance; $75 a visit.
  • Family Medicine Clinic, Berger Medical Centre, 1000 chemin Ste-Foy, Suite 116, Québec, Qué., 418-688-1385, fax 688-3249. Specializing in health care for children adopted abroad.
  • Mark Handley-Derry, M.D., 658 Danforth Ave., Suite 210, Toronto M4J 5B9 416-461-3937, mark.handley.derry@utoronto.ca. Pre- and post-adoption assessment. Waiting list, so book ahead if possible.
  • Sharon Marcovitch,M.D., 491 Lawrence Ave. West, Suite 405, Toronto M5M 1C7, 416-780-0909, fax 780-9490, drsharon@interlog.com. She is author of Romanian Adoptee and Family Follow-up Study. Pre- and post-adoption assessment.
  • Angelo Simone, M.D., Cdn Clinic for Adopted Children, 2338 Hurontario Street, #200, Mississauga, Ont. L5B 1N1. 905-848-8303, fax 848-5727, asimone@attcanada.net http://CdnClinicAdoptedChildren.homestead.com/CdnMedClinic.html
    Pre- and post-adoptive medical consultations for domestic and international adoption. Counsels parents, reviews video and medical reports. Reviews videos sent from abroad and emails or faxes back the evaluation to the parents abroad. Medical screening of children after arrival; developmental evaluations. Referrals to specialists. Most services covered by OHIP. Dr. Simone is Chief of Pediatrics at Trillium Health Centre.
  • Gaelle Vekemans, M.D., International Post-adoption Clinic, Centre Hospitalier Ambulatoire Régionale de Laval, 1515 boul. Chomedey, Laval, Qué. H7V 3Y7, 450- 978-8301, fax 978-8339. Working with Dr. Jean-Francois Chicoine. Post-adoption assessment. [From Gilles Breton, webmestre@quebecadoption.net]

    For updated information from Robin Hillborn's Adoption Helper site about medical professionals and international adoption follow this link

post-international adoption tests American Academy of Pediatrics recommendations for post-international adoption tests
note: many parents have vaccinations reported to have been done in China repeated upon adoption. To avoid unnecessary replication, tiiters performed by your pediatrician will ascertain whether the vaccination has either been performed or "taken." If doctors are not familiar with international adoption, parents will have to be the health advocate for their children.

Dr. Jane Aronson, a NYC specialist in international adoption medicine writes about the general health of institutionalized children in China here.

Assessing the age of your Chinese adopted child by Jane Aronson.

On our Chinese daughters as survivors. Dr. Aronson's narrative about the health of Lili.

The tests below are listed (July 2000) by Dr. Jane Aronson at http://www.orphandoctor.com/screen.htm
Laboratory Screening tests for International Adoption
CBC with differential and platelets (RDW, Retics)
Urinalysis with microscopic examination
Stools O&P X4 with Giardia antigen and Cryptosporidia smear (acid fast)
Stool C & S X1 (Salmonella, Shigella, Campylobacter, Yersinia)
Liver enzymes (SGOT, SGPT)
Rickets screen (Alkaline phosphatase, Calcium, Phosphorus)
Lead (venous)
Syphilis serology (RPR, FTA-ABS)
Hepatitis B surface antigen Hepatitis B surface antibody Hepatitis B core antibody total (these should be repeated in 6 months again) Hepatitis B core antibody IgM (these 3 tests should only be done if patient is Hep B sAg positive) Hepatitis B e antigen Hepatitis B e antibody
Hepatitis C antibody HIV-1
Elisa Thyroid function tests (Free T4, T4RIA, TSH)
Metabolic screen (PKU, Galactokinase, Biotinidase, etc.)
PPD (Mantoux test) Must be checked by health professional in 48-72 hours
Hearing and vision evaluations (especially in premature infants)

This is a note from a nurse practitioner on the AOK-listserve about some/all? of the tests she performs on children (including older) adopted internationally:
I am a pediatric nurse practitioner and do exams on children adopted internationally. The American Academy of Pediatrics and the CDC have guidelines for the labs and workups to be done on internationally adopted children. The following is a list of labs that should be performed as well as some that I recommend. CBC with diff. This is a complete blood count to look at the different components of the blood. Lead screen- many children in orphanages are exposed to lead based paints and many have been found to have elevated levels. SMA 22 - not always recommended, but provides useful information about the different electrolytes in the body. RPR - to rule out syphilis. Hepatitis B panel - (Hepatitis B surface antigen, Core antibody, and surface antibody) Important to rule out exposure or protection against hepatitis B. In include a Hepatitis C antibody, not a specific or definitive test for Hepatitis C. Thyroid panel - T4, T3, and TSH, thyroid problems are common in chinese children. HIV testing. Urinanalysis (I include a Urine culture, as a fair number of chinese children have mild underlying urinary tract infections). Stools for ova and parasites, culture and ghiardia antigen - a recent article I read showed some children infected with ghiadia, which is a parasite rarely detected with a stool culture, therefore I have included it in my testing. Hearing and vision screening is also recommended, some doctors or PNP's may not think this is important, but keep in mind you have no birth, pregnancy or newborn history. I recommend seeing an opthamologist and an ear/nose/throat specialist for these screenings. My child had a eye problem that was unknown to me and several of the children I've seen had hearing difficulties, correctable, but very important to correct for language aquisition. PPD - to check for tuberculosis, this should be done even if a child has received BCG. Antibody testing can be done to see if the child developed immunity to the vaccinations given, current recommendations are to restart all immunizations. All children should receive some developmental testing. If the child is under 3, the state will provide services such as occupational, physical and speech therapy. For children over 3, speech therapy is available through the school system. For more information on speech for children 3 and over, contact Special Education at your board of education. Your doctor may not be aware of these recommendations. You may suggest he reference the RED BOOK.


Study of Health of Children from Chinese Orphanages
A recent publication (June, 2000) in the journal Pediatrics provides recent information regarding the health statistics of children adopted from China. In this publication, the health conditions of over 400 children adopted from China are presented. Data were collected from two sources- a pediatric clinic in the NE US and a survey of families using one agency in the NE US. Among these children, the incidence of chronic carriage of hepatitis B surface antigen (carriers of the hepatitis B virus as detected by hepatitis B surface antigen in a blood test) was 5%. The incidence of exposure to hepatitis B or vaccination to hepatitis B was aproximately 20% (as detected by hepatitis B surface antibody). This percent of 5% is similar to that reported by other smaller studies previously. Thus, one might expect that aproximately 1 in 20 children adopted from China are found to be carriers of hepatitis B. Factors that appear to increase the likelihood of being a carrier include being older, and being from an orphanage that does not vaccinate children against hepatitis B. While most transmission of hepatitis B occurs from mother to child at the time of birth, additional transmission among toddlers and small children may occur in an institutional setting among unvaccinated children. There is a blood test for hepatitis B that most adopted children receive in China however the results of the testing in China may not reflect the results of testing subsequently done in the US. This is the most common significant infectious disease present in China. There is a vaccine currently available for children and adults in the US. Families who will be adopting from China may benefit from receiving the vaccine for both parents and children in the household setting. Transmission of hepatitis B in a household setting is uncommon as hepatitis B is transmitted by close contact with blood or body fluids. Vaccination (which requires a schedule of 3 injections) will further minimize the potential for any transmission. [PAC note from Hetty (can you tell I have a background in public health?)]


tuberculosis issues
RE BCG and TB test results ... the latest advice from the American Academy of Pediatrics is that docs should evaluate a TB test exactly as if reading a test for a child who had not gotten a BCG shot. The Mantoux (transdermal) test is recommended rather than the tine test. If the test reads positive than a chest x-ray would be ordered for further study. The website of the American Academy of Pediatrics (listed above) has a complete list of post-adopt tests: www.cyfc.umn.edu/Adoptinfo/screening.html

Other relevant links:

http://www.rainbowkids.com/500tbinadoptees.htm

http://www.fwcc.org/TB_BCG.htm

 


attachment issues

A short article by "Jessica" on institutionalized infants and attachment that has an excellent section on promoting attachment when you first adopt your child.

A brief note on attachment from an adoptive mother
(quoted with permission from Post-Adopt-China list)

"Almost every symptom of attachment disorder can be considered normal for some children. It's the combination, depth and frequency that can define attachment disorder from just a normal stage of development. Also, attachment disorder can be seen in bio children too! It isn't just reserved for the adoption world. There is a difference between "securely attached" and "anxiously attached." 4 main types of attachment are discussed on the attach-china website (and can be found on all attachment disorder websites; there are quite a few sites out there) and "insecure/anxious attachment" is one type of attachment disorder. The symptoms can be: * Less confident and assertive * Clingy/shadowing * Whiny, dependent, demanding * Too eager to please * Intrudes into adult space * Pouts when limits set * Separation anxiety (school, activities, doctor visits, etc) * Demanding of affection. A child may not have all of these; even if they only display one or two of these symptoms, they can still be diagnosed with Attachment Disorder. "My daughter bonded to us in seconds and stuck to us like Velcro," say some parents about their initial rapport with their adopted child. This is a common statement heard from newly adoptive parents and I believe it is a mis-conception for the most part. Since true bonding and attachment are formed based on a cycle of: need, need expressed, need met and calmness/quiescence that happens hundreds and thousands of times between a parent and child, it is unlikely that "instantaneous" true attachment is possible.... Attachment is a continuum and never a black and white issue."

For a brief introduction to attachment issues in Chinese children, see the following brochure produced by Families With Children From China - Metro Detroit who have put together "a concise, easy-to-read 20 page newsletter devoted to attachment parenting / attachment disorder and China adoption. With a little of everything, it is a great overview of the attachment process, ways to promote bonding, 'What I Would Do Differently', book resources, and personal stories. Much of the factual information was used, with permission from Lynne Lyon, from the attach-china website, and has been endorsed by attachment therapists in the metro Detroit area. Having this topic in print, in a non-threatening format, makes it easy to share this important info with family members, day-care providers, and pediatricians. It is a wonderful tool to introduce what we may be experiencing with our children, to the people in our lives that we care about....The newsletter also contains information that families-in-waiting should read before traveling...there's lots of good tips listed to enhance attachment, without deliberately scaring away the new parents who might need this information most. Consider purchasing several copies for yourself to educate your friends and family, or buy in packs of 10 or more for your local FCC. $2.50 each for copies up to 10, $2.00 each for 10 or more. Professionally printed on heavy-stock. Checks made out to FCC-MD are tax-deductable. For more info please contact Jean MacLeod at jmac1@home.com or Laura Hodges at Yichanglrh@home.com.

A message from the moderator of attach-china listserve on their website (Wed, 26 Apr 2000) It is important for adoptive families to recognize how a child's early experiences can impact their future emotional development. Children adopted from China have experienced the loss of their birthmothers, physical abandonment, and multiple caretakers. Most have suffered deprivation and/or neglect in varying degrees. To find out more about this, visit the newly updated Attach-China website at our new internet address: www.attach-china.org The updated site has new information on every page, and has added a very exciting new section called "Our Voices". The families on the attach-china e-mail listserv have come together to share our personal experiences, in the hopes that readers will gain insight into how attachment issues present themselves in children adopted from China. This is the new table of contents:
THE BASICS - When the Bonding Cycle is Broken - Attachment & Bonding by Walter D. Buenning, PhD (originally appeared in Chosen Child, reprinted with permission) - Types of Attachment -
Treatment OUR VOICES - Why Chinese Adopted Children are at Risk for Reactive Attachment Disorder: --
Part I: Secure Attachment and Reactive Attachment Disorder -- Part II: The RAD Continuum -- Part III: Healing and Treatment -RAD symptoms - a new, comprehensive list linked to actual descriptions as experienced by attach-china families -FAQs - frequently asked questions - Promoting Attachment - activites and games to do with your child -Our Stories - 2 stories from Attach-China families RESOURCES - Adult Reading List - Children's Books recommended by the attach-china families - Special Events - workshops and speaking schedules of adoption experts - Therapists - Links to related web sites

For recommended activities to promote attachment in your adopted child see: http://members.aol.com/RADchina/activities.html

For extended discussion about attachment issues in Chinese adopted children, join the listserve at www.attach-china.org

Attachment parenting lists:

www.kuddlekids.com

www.members.aol.com/toddleroo/activities/list.htm

www.netaxs.com/~sparky/adoption/attach_2.htm

www.radinfo.homestead.com/InfantReparentingNurturing~ns4.html

www.rtc.pdx/edu/fp/spring96/parent.htm

See also information at 'The Attachment Centre at Evergreen'
"What You Should Know Before You Adopt a Child" (note: this concerns American domestic adoption primarily but some of the issues are relevant to Chinese adoption. Attachment disorder is NOT unheard of with Chinese institutionalized children, even though it appears to be less prevalent than many of those from other groups.)

"International Adoption: Challenges and Opportunities." from the Parent Network for the Post-Institutionalized Child - International Site

"Does Attachment Therapy Work?: Results of Two Preliminary Studies" by Liz Randolph, PhD and Robin Myeroff, PhD



A parital list of U.S.

International Adoption Clinics:

  • Margaret Hostetter, MD Professor of Pediatrics and Chief, Section of Immunology Director, Yale Child Health Research Center 464 Congress Avenue New Haven, CT 06520 203/737-4480 tel 203/737-5972 fax
  • Jerri Jenista, MD 551 Second St. Ann Arbor, MI 48103 734/668-0419 tel 734/668-9492 fax Dana Johnson, MD International Adoption Clinic The University of Minnesota Hospital and Clinic Box 211 420 Delaware St. SE Minneapolis, MN 55455
    612/626-2928 tel 612/624-8176 fax
  • Laurie Miller, MD Director International Adoption Clinic The Floating Hospital for Children New England Medical Center 750 Washington St. Boston, MA 02111 617/636-8121 617/636-8388 Website: www.nemc.org/adoption
  • International Adoption Evaluation Center Hughes Spalding Children's Hospital 35 Butler Street S.E. PO Box 26020 Atlanta, Georgia 30335-3801
    404-616-0650 fax 404-616-1982 adopt@oz.ped.emory.edu

For a complete list of U.S. International Adoption Clinics
refer to Bob Crawford's China Connection Site